Version: 1.0.0 | Published: 28 Oct 2024 | Updated: 288 days ago
Virtual wards for Exacerbations of Chronic Obstructive Pulmonary Disease
Dataset
Documentation
Associated Media:
Description:
There is increasing interest in care pathways for acute exacerbations of disease, which are safe but avoid hospital admission. A virtual ward is a system where people who may otherwise be admitted to hospital receive hospital-led care in their home with observations and reviews conducted remotely by a specialist team. A virtual ward for COPD exacerbations has been recommended by NHS England, promoted following a rapid evaluation report published in 2022 and a number of small studies. To support the evaluation of this new service, PIONEER has developed a highly granular dataset of 6,973 Respiratory Virtual Ward admissions. The data includes demography, serial physiology, assessments, diagnostic codes (ICD-10 & SNOMED-CT), initial presentation, presenting symptoms, Imaging, Prescriptions, Ward locations and outcomes including mortality, readmissions and out patient follow up. The current dataset includes admissions from January 2019 to December 2023.
Geography: The West Midlands (WM) has a population of 6 million & includes a diverse ethnic & socio-economic mix. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & > 120 ITU bed capacity. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.
Data set availability: Data access is available via the PIONEER Hub for projects which will benefit the public or patients. This can be by developing a new understanding of disease, by providing insights into how to improve care, or by developing new models, tools, treatments, or care processes. Data access can be provided to NHS, academic, commercial, policy and third sector organisations. Applications from SMEs are welcome. There is a single data access process, with public oversight provided by our public review committee, the Data Trust Committee. Contact pioneer@uhb.nhs.uk or visit www.pioneerdatahub.co.uk for more details.
Available supplementary data: Matched controls; ambulance and community data. Unstructured data (images). We can provide the dataset in OMOP and other common data models and can build synthetic data to meet bespoke requirements.
Available supplementary support: Analytics, model build, validation & refinement; A.I. support. Data partner support for ETL (extract, transform & load) processes. Bespoke and “off the shelf” Trusted Research Environment (TRE) build and run. Consultancy with clinical, patient & end-user and purchaser access/ support. Support for regulatory requirements. Cohort discovery. Data-driven trials and “fast screen” services to assess population size.
Coverage
Typical Age Range:
0-150
Follow Up:
0 - 6 Months
Pathway:
Data is representative of the multi-ethnicity population within the West
Midlands (42% non white). Data includes all patients admitted during this
timeframe, with National data Opt Outs applied, and therefore is representative
of admissions to secondary care. Data focuses on in-patient stay in hospital
during the acute episode but can be supplemented on request to include previous
and subsequent hospital contacts (including outpatient appointments) and
ambulance, 111, 999 data.
Provenance
Origin
Purposes:
Care
Sources:
EPR
Collection Situations:
- Secondary care - Accident and Emergency
- Community
Temporal
Accrual Periodicity:
Quarterly
Distribution Release Date:
29 October 2024
Start Date:
01 January 2019
End Date:
31 December 2023
Time Lag:
Less than 1 week
Accessibility
Access
Access Service:
Trusted Research Environments (TRE) are built using Microsoft Azure services and
hosted in the UK to provide research teams a safe, secure and agile environment
which allows users to quickly analyse, interpret and form an enriched view of
primary care information through a range of integrated datasets. Health data
collated from multiple sources is ingested into a secure data lake which will
then allow subsets of data to be made available to research teams on approval of
a data request. Once approved a customer specific TRE is made available with a
standard set of leading analytical tools from Microsoft including Azure
Databricks, Azure Machine Learning, Azure SQL and Azure Synapse (for large-scale
data warehouses). Specific tools can be provided at an additional cost over the
standard platform data access charge and the PIONEER team will work with you to
determine your exact needs. Access to the TRE is managed using the latest
virtual desktop technology to provide a safe and secure end-user experience. By
utilising leading edge design PIONEER are able to create TREs rapidly to enable
us to service any customer requirement.
Access Request Cost:
www.pioneerdatahub.co.uk/data/data-services-costs/
Delivery Lead Time:
1-2 months
Jurisdictions:
GB-ENG
Data Controller:
University Hospitals Birmingham NHS Foundation Trust
Data Processor:
NOT APPLICABLE
Usage
Data Use Limitations:
General research use
Data Use Requirements:
Project-specific restrictions
Resource Creators:
This publication uses data from PIONEER, an ethically approved database and analytical environment (East Midlands Derby Research Ethics 20/EM/0158)
Format and Standards
Vocabulary Encoding Schemes:
- LOCAL
- ICD10CM
- SNOMED CT
Conforms To:
LOCAL
Languages:
en
Formats:
- SQL
- csv
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
2,158 unique patients who attended the respiratory
virtual ward or met the control group criteria
2158
Count
29 July 2024